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update on my mom

My mom's health has been slowly ... painfully slowly ... declining for several years now, as some of you know.

You may not know that she was in hospice for the first three months of this year, and was "kicked out," b/c her health was stabilized. A month and a half later ... this past Friday ... her medical team decided she needed to be in hospice again. So now she's in out-patient hospice. No more musical rooms. It's too much.

Some of her changes seem subtle on the surface, but I can definitely see that her energy is decreased. She doesn't talk much, which has been difficult. And she doesn't complain about pain and/or discomfort. So it's hard to know how she's doing unless she's examined.

Today, I asked her if she felt any pain or discomfort and she said, "Yes." Then I asked her to show me where she was feeling badly. She was able to do that ... even with her dementia, which doesn't help her communication. I'm learning to ask the right questions.

Asking her, "Where do you hurt?" she can't remember. Asking to show where it hurts gets right to the point.

Interesting how the mind works.

I'm really having a difficult time seeing her like this ... I wish I could make it go away. I wish she wasn't suffering in such a slow process.

Peace to all of you here at LJ.

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Comments

(Deleted comment)
lost_tumbleweed
Jun. 1st, 2006 06:03 am (UTC)
no need for words, maura.

my mom and i spend loads of silent time together. i'll cuddle up with her and hold her hand or stroke her forehead. she enjoys that.

thank you for your hugs!

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